The health care system often relies on patients to provide information, sometimes about symptoms or activities or adherence to treatment plans and sometimes more formally as patient-reported outcomes in research. Those of you who watched the medical show House know that he always believed patients lied. While it may not be as extreme as that, there is good reason to be concerned about the accuracy of information provided by patients. Knowing the frequency of inaccurate information and whether inaccuracy is more prevalent for certain kinds of data could help clinicians and researchers adjust accordingly. A poster presented at an American Health Association conference discusses this issue in the context of African Americans and heart disease. (AJMC Poster) The study looked at responses by 389 patients to a questionnaire designed to identify risk factors for cardiovascular problems. The average age was 53 and 61% were female. Patients were asked to self-report any history of certain conditions and their height and weight. They were also asked about the presence of various risk factors. 47% inaccurately reported at least one risk factor. 21% under-reported hypertension, while 1% over-reported; 25% under-reported hyperlipidemia, while 9% over-reported; 15% under-reported diabetes versus a 1% over-report; and 3% under-reported obesity and less than 1% over-reported that condition. You can see the tendency to avoid disclosure of factors that might be perceived negatively; part of the usual human tendency to be in denial. The consequences are also obvious. If clinicians relied solely on this self-reported information, they would miss many patients with higher risk factors who might need greater attention to management of their conditions to avoid acute exacerbations of heart disease. So the message to clinicians is that they shouldn’t rely on patient reported information, although it is probably worth collecting, if only to provide teachable moments for patients in regard to the importance of understanding and accurately communicating their health status and history. And for all of us as patients, we should be aware that not being fully disclosing, even of things we may be embarrassed by or not want to acknowledge, can hinder the ability of our providers to keep us in optimal health.
About this Blog
The Healthy Skeptic is a website about the health care system, and is written by Kevin Roche, who has many years of experience working in the health industry. Mr. Roche is available to assist health care companies through consulting arrangements through Roche Consulting, LLC and may be reached at [email protected].
Healthy Skeptic Podcast
Subscribe to Blog via Email
As is usually the case in health care, the big just keep getting bigger. UnitedHealth Group’s Optum division is buying NaviHealth, which helps manage post-acute care for Medicare Advantage members.
May 20, 2020
Stellar Health shines as it raises $10 million in new financing for its business of aiding providers and payers in doing value-based care.
May 14, 2020
Another typical post. For new readers, this blog usually is all health care business, policy, and research and one staple is me making fun of the ridiculous names people put...
May 7, 2020
MedPAC 2019 Report to Congress
June 18, 2019